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As awareness of rare diseases has grown, significant investment has been made to improve the processes and systems to support correct diagnosis and patient care. However, many of these initiatives are focused on a national level, which can create unintentional barriers for clinical research. Rare disease studies require a patient-centric approach and are often designed around the needs (and locations) of patients living with the disease. This Rare Disease Day, we take a brief look at what recent developments have been made into rare disease clinical research, and what we may be able to learn from them.

Lupus is a chronic autoimmune disease that affects millions worldwide, with 1 in 1000 people in the UK diagnosed. As the flare-ups can be unpredictable and impact one or multiple organs, innovative and advancing treatments are key. Clinical trials are highly important for those with lupus, because despite medical professionals understanding the disease more, treatments […]

Melanoma is an aggressive form of skin cancer that has historically posed significant challenges for patients and healthcare providers. In the UK, there are around 48 new cases of Melanoma per day, and is the 5th most common cancer. In recent years, clinical trials have driven progress in treating the disease, offering hope to patients […]

Bladder cancer research benefits from clinical trials to advance research, drug development and treatments. Crucial research and findings come from clinical trials that aid not only in treating those with the disease, but also in progressing screening processes to make easier and earlier diagnosis.  According to Cancer Research, there are around 10,500 new bladder cancer […]

Clinical trials have been a cornerstone of the medical field for decades, serving as a critical foundation for the development and advancement of treatments across a wide range of diseases and health conditions. Beyond establishing the safety and effectiveness of new treatments, clinical trials also play a vital role in exploring ways to enhance care, […]

Clinical trials are essential for advancing treatments for sarcoidosis, especially since no cure currently exists. With the cause of sarcoidosis still unknown, ongoing research remains critical to understanding and combating the disease. Simbec-Orion is a Clinical Research Organisation specialising in rare diseases and oncology, with almost five decades of experience in delivering clinical trial management […]