Read our latest article - Rare disease clinical trials continue, thanks to new technology
Rare Disease Day offers a valuable opportunity to raise awareness of rare disease and campaign for health equity. We are delighted to take part in Health Awareness’ Rare Diseases campaign this year, which in addition to our own contribution, features articles from Genetic Alliance UK, Rare Diseases International and EURORDIS to offer a diverse range of views and opinions on rare disease in 2021.
For our contribution, Dr. Carlos Camozzi, Chair of our Rare and Orphan Scientific Advisory Board discusses the importance of patient centricity and the impact Covid-19 has had on rare disease clinical trials. You can read the feature (and find us on page 11) here.